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Drivers for Change – Share Data & Knowledge

Equity Framework > Drivers for Change > Sharing Data & Knowledge

Sharing and using data is an important part of understanding need and equitably distributing resources. When data is collected, the question of who ‘owns’ any data, who can use it, and who may access the knowledge gained from that data may arise. In this context, sharing data and knowledge means who can use it and pass it on. It is especially important that data and knowledge is available to the communities who helped generate it, recognition is given to new knowledge made by communities, that they receive benefits related to the data and knowledge outputs, and have the right to use and share data and knowledge.

As well, data can be sensitive material with serious implications for communities. Clear, open, honest discussions and negotiations about what to share, how to share it, desired outcomes, and possible impacts is an important and ongoing part of data sharing.

Adapted from:

  1. Community-based participatory research: A guide to ethical principles and practice. Centre for Social Justice and Community Action, Durham University & National Co-ordinating Centre for Public Engagement, November 2012. Retrieved from
    https://www.livingknowledge.org/fileadmin/Dateien-Living-Knowledge/Dokumente_Dateien/Toolbox/LK_A_CBPR_Guide_ethical_principles.pdf
  2. HealthEquityGuide.org – Share Power with Communities. Retrieved from
    https://healthequityguide.org/strategic-practices/share-power-with-communities/

Further Reading / Additional resources

HealthEquityGuide.org – Share Power with Communities: How Can We Share Power with Communities? Retrieved from
https://healthequityguide.org/strategic-practices/share-power-with-communities/

Andruszkiewicz, N., & Branston, A. (n.d.). Evidence Brief: Identifying Facilitators and Processes for Sharing Local Data with Community Partners to Enable Improvement in Health Equity. Public Health Ontario.
https://www.publichealthontario.ca/-/media/documents/ldcp-health-equity-eb-sharing-data.pdf?la=en&hash=4FAE06D7D3B21498C8C72822C294734D2B064577

Sample Tools

Open Data is a City of Toronto initiative that provides digital data to be freely used, reused, and redistributed by anyone, anytime and anywhere.
https://www.toronto.ca/city-government/data-research-maps/open-data/

Can also link to Raising the Village where multiple data sources have been shared and used to visualize population level outcomes and inequities